What is Shwachman Diamond Syndrome?

Shwachman Diamond Syndrome (SDS) is a rare genetic disorder. SDS affects many organs in the body and the symptoms may vary from individual to individual.

The primary features of SDS include: bone marrow problems (leading to inadequate production of some types of white blood cells), a defect in the pancreas (leading to difficulties in digesting food), skeletal abnormalities, and short stature. Other, secondary, features may affect some but not all people with SDS.

People with SDS are at risk for serious, sometimes fatal, complications such as severe infections, acute myelogenous leukemia and bone marrow failure.

SDS Canada’s Picture Gallery

Camp Quality is a non-profit, volunteer organization that, in addition to our signature week-long camping experience, provides year-round support for children with cancer (receiving treatment or in remission) and their families. Camp Quality applications are being accepted throughout the country.

Click here for the applications forms.

Camp Sunshine provides respite, support, joy, and hope to children with life-threatening illnesses and their immediate families from around the world through the various stages of their journeys. The year-round program is free of charge to all families, and includes 24-hour onsite medical and psychosocial support. Every two years, Camp Sunshine hosts “Shwachman-Dimanond Syndrome” week. Stay tuned for the 2016 camp dates (to be announced in Spring 2016).

You Can Make A Difference!

With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.

Please click here to access our donation page


Register a SDS patient.

Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.

Recent Facebook Posts

Photos from Shwachman-Diamond Syndrome Canada's post

The 8th International SDS Scientific Congress in Verona Italy has come to an end. We are very proud to have spent this time with researchers and doctors from around the world in order to discover more about treatment and care of our SDS patients. We are also very proud that we had 7 Canadian doctors presenting talks during the meeting! Furthermore, we had the opportunity to meet and connect with multiple family organizations and foundations working for SDS from all over the world! The meeting ended..

8 likes, 1 comments1 month ago

Photos from Shwachman-Diamond Syndrome Canada's post

8th International SDS Congress – Canadian Delegation at Gala Dinner, Verona, Italy #CanadianSelfie #WorkHardPlayHard

3 likes, 0 comments1 month ago

Photos from Shwachman-Diamond Syndrome Canada's post

The 8th International SDS Congress in Verona is now underway! We are having a great time connecting to doctors and foundation members from all over the world. Looking forward to the next three days of learning and networking with participants!

12 likes, 0 comments1 month ago