What is Shwachman Diamond Syndrome?

Shwachman Diamond Syndrome (SDS) is a rare genetic disorder. SDS affects many organs in the body and the symptoms may vary from individual to individual.

The primary features of SDS include: bone marrow problems (leading to inadequate production of some types of white blood cells), a defect in the pancreas (leading to difficulties in digesting food), skeletal abnormalities, and short stature. Other, secondary, features may affect some but not all people with SDS.

People with SDS are at risk for serious, sometimes fatal, complications such as severe infections, acute myelogenous leukemia and bone marrow failure.

SDS Canada’s Picture Gallery

Camp Quality is a non-profit, volunteer organization that, in addition to our signature week-long camping experience, provides year-round support for children with cancer (receiving treatment or in remission) and their families. Camp Quality applications are being accepted throughout the country.

Click here for the applications forms.

Camp Sunshine provides respite, support, joy, and hope to children with life-threatening illnesses and their immediate families from around the world through the various stages of their journeys. The year-round program is free of charge to all families, and includes 24-hour onsite medical and psychosocial support. Every two years, Camp Sunshine hosts “Shwachman-Dimanond Syndrome” week. Stay tuned for the 2016 camp dates (to be announced in Spring 2016).

You Can Make A Difference!

With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.

Please click here to access our donation page

donate-now

Register a SDS patient.

Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.

Recent Facebook Posts

Timeline Photos

Great presentations and networking going on today at the Pediatric and Adolescent Aplastic Anemia and Marrow Failure Meeting at the BC Children’s Hospital in Vancouver! Thank you for including us Aplastic Anemia & Myelodysplasia Association of Canada and Fanconi Canada!

3 likes, 0 comments4 weeks ago

Timeline Photos

The will be a Bone Marrow Failure Family Meeting on August 27th in Vancouver. We encourage all SDS families in the area to attend! Board president Zoe will be there too, and she can’t wait to meet more of our great families! Please message us for further details! http://aamac.ca/files/PediatricMeetingRegistrationForm–August27,2016.pdf

5 likes, 0 comments1 month ago

Timeline Photos

Here are the four Canadian SDS families attending Camp Sunshine this week, with our beloved Dr Johanna Rommens!! We are making wonderful connections, learning great medical info, having lots of fun and creating fantastic memories! More pictures to come soon!

15 likes, 1 comments2 months ago