About Us

Shwachman-Diamond Canada is a registered Canadian charity (Registered Charity #86880-8197 RR001) dedicated to raising and awarding funds for much needed research, disseminationd information and improving the quality of life for children and adults with SDS and their families.

The SDS Canada Board of Directors & Officers (2015)

President: Zoé Nakata (Manitoba)

Treasurer: Greg Symons (Toronto, ON)

Secretary: Kim Smyth (Toronto, ON)

Janice Pilgrim (Ottawa, ON)

Heather Norton (Toronto, ON)

Lynda Ellis (Toronto, ON)





SDS Canada Goals:

  • to raise funds to support ground-breaking research into SDS
  • to disseminate current medical information regarding SDS
  • to heighten awareness of SDS in the broader medical community to allow earlier diagnosis and treatment
  • to develop a network of contacts and resources to assist people with SDS

SDS Canada Membership (by application)

  • general (voting) members: any adult Canadian Citizen with SDS or parent or legal guardian of an individual with SDS
  • associate (non-voting) members: any Canadian citizen who wishes to express their support to families with SDS

Click here to register with us!



You Can Make A Difference!

With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.

Please click here to access our donation page


Register a SDS patient.

Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.

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