About Us

Shwachman-Diamond Canada is a registered Canadian charity (Registered Charity #86880-8197 RR001) dedicated to raising and awarding funds for much needed research, disseminationd information and improving the quality of life for children and adults with SDS and their families.

The SDS Canada Board of Directors & Officers (2015)

President: Zoé Nakata (Manitoba)

Treasurer: Greg Symons (Toronto, ON)

Secretary: Kim Smyth (Toronto, ON)

Janice Pilgrim (Ottawa, ON)

Heather Norton (Toronto, ON)

Lynda Ellis (Toronto, ON)





SDS Canada Goals:

  • to raise funds to support ground-breaking research into SDS
  • to disseminate current medical information regarding SDS
  • to heighten awareness of SDS in the broader medical community to allow earlier diagnosis and treatment
  • to develop a network of contacts and resources to assist people with SDS

SDS Canada Membership (by application)

  • general (voting) members: any adult Canadian Citizen with SDS or parent or legal guardian of an individual with SDS
  • associate (non-voting) members: any Canadian citizen who wishes to express their support to families with SDS

Click here to register with us!



You Can Make A Difference!

With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.

Please click here to access our donation page


Register a SDS patient.

Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.

Recent Facebook Posts

Timeline Photos

Holiday Greetings from Shwachman Diamond Canada – On behalf of all of us at SDS Canada, we would like to wish you a very Merry Holiday Season and Happy New Year! Thank you for being part of the SDS Canada family. Your generosity and involvement truly makes a difference!https://mailchi.mp/be42e8a31f47/holiday-greetings-from-shwachman-diamond-canada

0 likes, 0 comments10 months ago

Donate Now - Shwachman-Diamond Syndrome

Today is #GivingTuesday! A day to celebrate the generosity of our community and supporters. Consider donating to SDS Canada today. Your donation is helping medical research for children and adults living with SDS and supporting them and their families. With your generosity, we can help find better treatments for this disease and give hope to families across Canada. ❤️ http://sdscanada.ca/donate/

0 likes, 0 comments11 months ago

For families in the GTA area, here is a great family day session being offered by SickKids Hospital on April 14th!

4 likes, 0 comments1 year ago