Research Grants Program

SDS-Canada is committed to supporting research to benefit people with this genetic disease. We accept applications for research ranging from basic science projects at the molecular level (eg. identification of the gene) through to very applied projects aimed at enhancing the quality of life for people with SDS. We strive to support good, “hypothesis driven” science.

Our priority is “seed funding” i) to encourage startup of a program for new investigators; or ii) to allow established investigators to establish a new research direction. This seed money allows investigators to establish a research base and/or pilot data from which they could apply for grants from larger agencies such as CIHR.

The awards have a maximum of term of three years, although one and two-year proposals are encouraged and will be considered. For exceptional proposals and where justified, a maximum of $25.000/y will be awarded.

All applications are scientifically peer-reviewed. While researchers are important in the peer-review process (especially in specialized adjudication of proposals), policies are in place to ensure that conflict-of-interest does not arise.

Successful applicants will be required to submit a yearly report prior to renewal. Tri-council ethics guidelines (CIHR, NSERC, and SSHRC) will apply to research carried out with funds granted by SDS Canada. Further, research activities will comply with policies and procedures of sponsoring institution.

Grants Awarded

To date, we have raised and disseminated over $400,000 for research. Many of the projects we have “seed” funded have subsequently gone on to lever our investment by obtaining major national grants. Our seed funding provided the resource base for pilot work, which was instrumental in the success of the larger national grants.



You Can Make A Difference!

With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.

Please click here to access our donation page


Register a SDS patient.

Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.

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