Bellow is a list of links to web pages that we thought might be useful and interesting for people interested in Shwachman-Diamond Syndrome.
The Marrow Failure and Myelodysplasia Program: http://www.sickkids.ca/MFMP/index.html
Canadian Inherited Marrow Failure Registry: http://www.sickkids.ca/CIMFR/
Neutropenia Support Association Inc. : http://www.neutropenia.ca
With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.
Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.
For families in the GTA area, here is a great family day session being offered by SickKids Hospital on April 14th!
Intéressant! Webdiffusion gratuite au sujet de l’Immunothérapie pour ceux/celles intéressés.
Are you or a family member interested in getting involved with SDS Canada? We are always looking for volunteers for special projects and for the board of directors. Message me for details! Meetings are by conference call so you can participate from anywhere! Êtes-vous intéressé à vous impliquer avec SDS Canada? On est toujours à la recherche de bénévoles pour des projets spéciaux et pour le conseil d’administration. Les reunions sont tenus par appel conférence, donc vous pouvez participer..
