Bellow is a list of links to web pages that we thought might be useful and interesting for people interested in Shwachman-Diamond Syndrome.
The Marrow Failure and Myelodysplasia Program: http://www.sickkids.ca/MFMP/index.html
Canadian Inherited Marrow Failure Registry: http://www.sickkids.ca/CIMFR/
Neutropenia Support Association Inc. : http://www.neutropenia.ca
With the help of generous donors and sponsors, SDS Canada aims to fund ground-breaking research to help all individuals living with SDS. With you, we CAN conquer this disease! Your gift can be a one-time donation, a gift in memory or in honor of a loved one, a monthly donation or as a gift in your will.
Registering with SDS Canada gives us a way to reach out and stay connected with patients and families living with SDS. We send out regular newsletters with information about family events, our fundraising efforts and the latest in SDS research.
Today is #GivingTuesday! A day to celebrate the generosity of our community and supporters. Consider donating to SDS Canada today. Your donation is helping medical research for children and adults living with SDS and supporting them and their families. With your generosity, we can help find better treatments for this disease and give hope to families across Canada. ❤️ http://sdscanada.ca/donate/
For families in the GTA area, here is a great family day session being offered by SickKids Hospital on April 14th!
Intéressant! Webdiffusion gratuite au sujet de l’Immunothérapie pour ceux/celles intéressés.
